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1.
Enferm. intensiva (Ed. impr.) ; 32(3): 133-144, Julio - Septiembre 2021. graf, tab
Artigo em Espanhol | IBECS | ID: ibc-220631

RESUMO

Objetivo Explorar la experiencia de las enfermeras en relación con la facilitación de la visita infantil a la UCIP. Método Estudio fenomenológico interpretativo mediante entrevistas en profundidad. El estudio se desarrolló en las UCIP de dos centros públicos madrileños de nivel IIIC. Participaron 12 enfermeras con experiencia mayor de dos años en UCIP que, en el momento de la entrevista, prestaban servicios en dichas unidades. Además, se entrevistó a una psicóloga con experiencia de cuatro años en UCIP cuya información se consideró en el contexto de los datos en la sombra. La información se analizó mediante un análisis temático del discurso. ResultadosLa experiencia de las enfermeras en relación a la facilitación de la visita infantil a la UCIP se puede condensar en cuatro temas: el emerger de la demanda, la preparación progresiva, la toma de decisiones desde el consenso y la creación de espacios de intimidad. Conclusiones Las experiencias de facilitación de la visita responden, principalmente, a la demanda de las familias que viven hospitalizaciones prologadas o al final de la vida. El rol de la enfermera es de acompañamiento reconociendo la labor prioritaria de los padres en la preparación de los niños y el desarrollo de la visita. Las enfermeras se sienten inseguras y faltas de recursos para el apoyo emocional y reclaman protocolos de actuación que orienten la intervención y toma de decisiones. (AU)


Aim To explore nurses’ experience related to promoting the visits of siblings to PICU. Methods An interpretative phenomenological study was carried out through in-depth interviews in two PICUs belonging to third level public hospitals in Madrid. Twelve nurses with more than two years of experience in PICU were interviewed. They all were working in PICU during the study. Furthermore, a PICU psychologist with an experience of four years was interviewed and this was considered shadowed data. Data analysis followed a thematic discourse analysis. Results Nurses’ experience of facilitating children's visits to PICU can be condensed into four themes: emerging demand for visits, progressive preparation, decision-making through common consensus and creating intimate spaces. Conclusions The experience of nurses in facilitating visits is mainly in response to the demand of families going through prolonged hospitalisation or end-of-life situations. The role of the nurse is one of accompaniment, recognising the major role of parents in the preparation of children and in developing the visit. Nurses feel insecure and lack resources for emotional support and demand action protocols to guide intervention and decision making. (AU)


Assuntos
Humanos , Pré-Escolar , Criança , Criança , Unidades de Terapia Intensiva Pediátrica , Enfermagem Familiar , Defesa da Criança e do Adolescente , Espanha
2.
Enferm Intensiva (Engl Ed) ; 32(3): 133-144, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34391734

RESUMO

BACKGROUND: Family process disruption is one of the main consequences of the hospitalization of a critically ill child in a Paediatric Intensive Care Unit (PICU). Children's visits to PICU may help improve family coping. However, this is not standard practice and nurses' experiences in facilitating children's visits to units where it is encouraged is unknown. AIM: To explore nurses' experience related to promoting the visits of siblings to PICU. METHODS: An interpretative phenomenological study was carried out through in-depth interviews in two PICUs belonging to third level public hospitals in Madrid. Twelve nurses with more than two years of experience in PICU were interviewed. They were all were working in PICU during the study. Furthermore, a PICU psychologist with an experience of four years was interviewed and this was considered shadowed data. Data analysis followed a thematic discourse analysis. RESULTS: Nurses' experience of facilitating children's visits to PICU can be condensed into four themes: emerging demand for visits, progressive preparation, decision-making through common consensus and creating intimate spaces. CONCLUSIONS: The experience of nurses in facilitating visits is mainly in response to the demand of families going through prolonged hospitalisation or end-of-life situations. The role of the nurse is one of accompaniment, recognising the major role of parents in the preparation of children and in developing the visit. Nurses feel insecure and lack resources for emotional support and demand action protocols to guide intervention and decision making.


Assuntos
Unidades de Terapia Intensiva Pediátrica , Enfermeiras e Enfermeiros , Adaptação Psicológica , Criança , Estado Terminal , Humanos , Pais
3.
Acta pediatr. esp ; 67(8): 377-383, sept. 2009. tab
Artigo em Espanhol | IBECS | ID: ibc-75916

RESUMO

Objetivo: Describir la frecuencia, morbimortalidad y tratamiento de la disfunción diafragmática (DD) en el postoperatorio de la cirugía cardiaca infantil. Pacientes y métodos: Serie de casos de DD identificados entre la población de niños intervenidos de cirugía cardiaca en el hospital «12 de Octubre» de Madrid, entre 1997 y 2006. Se obtuvieron retrospectivamente datos demográficos, de la cirugía y del postoperatorio, así como de la estancia hospitalaria yde la morbimortalidad. Resultados: Cirugía cardiaca en 1.063 niños, diagnosticándose 23 casos de DD. Se excluyó un caso secundario a neuropatía generalizada. La frecuencia global fue del 2,1%. La mediana de edad fue de 14 días (1 día-16 meses), siendo 20 de los casos menores de 1 año. Se realizó plicatura en 13 pacientes (62%). Las indicaciones de plicatura fueron: fracaso de extubación (n= 11) y dificultad respiratoria persistente (n= 2).Fue preciso realizar plicatura quirúrgica en 9 de los 13 neonatos. El tiempo de ventilación mecánica invasiva, estancia en unidad de cuidados intensivos pediátricos (UCIP) y estancia hospitalaria en los casos con paresia fue de 8, 12 y 20 días(mediana), respectivamente. Las parálisis precisaron mayor tiempo de ventilación invasiva y de ingreso (19, 34 y 47,5 días). Conclusiones: A todo neonato intervenido de una cardiopatía compleja debería realizársele una ecografía diafragmática en respiración espontánea previa a su extubación, para así establecer el diagnóstico de manera precoz, con el objetivo de reducir el tiempo de ventilación mecánica y la morbilidad asociada (AU)


The objective of this study is to describe the frequency, morbimortality and treatment of diaphragmatic dysfunction (DD) after pediatric cardiac surgery. Patients and methods: Series of DD cases identified among the population of children who underwent cardiac surgery at the hospital 12 de Octubre of Madrid from the years 1997-2006. Demographic, surgical and postsurgical data have been obtained retrospectively, as well as data on hospital stay and the morbimortality. Results: A total of 1,063 children underwent cardiac surgery, diagnosing 23 DD cases. A secondary case was excluded due to generalized neuropathy. The global frequency was of 2.1%,the mean age was 14 days (1 d-16 m), being 20 of the cases under 1 year of age. Reefing was performed in 13 patients (62%). The indications for reefing were due to extubation failure (n= 11) and persistent respiratory difficulties (n= 2).Surgical reefing had to be performed in 9 from the 13 newborns. In the cases of paresis the length of the invasive mechanical ventilation, stay at the PICU and hospital stay was 8,12 and 20 days (mean) respectively. The paralysis required alonger time of invasive ventilation and hospitalization (19, 34 and 47,5 days).Conclusions: A diaphragm echography in spontaneous breathing should be performed on any newborn that underwent a complex cardiopathy surgery previous to the extubation in order to determine an early diagnosis and to reduce the length of mechanical ventilation and associated morbidity (AU)


Assuntos
Humanos , Masculino , Feminino , Recém-Nascido , Lactente , Pré-Escolar , Criança , Adolescente , Paralisia Respiratória , Paralisia Respiratória/mortalidade , Paralisia Respiratória/complicações , Paralisia Respiratória/diagnóstico , Paralisia Respiratória/epidemiologia , Paralisia Respiratória/etiologia , Paralisia Respiratória/terapia , Cirurgia Torácica , Nervo Frênico/lesões , Estudos Retrospectivos , Estudos Prospectivos
5.
An Pediatr (Barc) ; 70(3): 223-9, 2009 Mar.
Artigo em Espanhol | MEDLINE | ID: mdl-19409239

RESUMO

INTRODUCTION: Chylothorax is a fairly common condition seen in paediatric intensive care units, since it usually appears in the postoperative care of cardiothoracic surgery. Nevertheless, there is still uncertainty on the most effective treatment option and the prognostic factors for a positive response. OBJECTIVES: To describe our experience in the management of patients with chylothorax admitted to our paediatric intensive care unit (PICU). To look for prognostic factors for a response to the different treatments. MATERIAL AND METHOD: This is a descriptive and analytical, retrospective study, that includes the period 2000-2007. All cases of chylothorax of any aetiology diagnosed during this period in our PICU were included (excluding congenital neonatal cases). Demographic variables, aetiology, evolution of the debit, complications, type of treatment with results and side effects were recorded, along with the clinical progress. The possible relationship between the different variables (age, aetiology, debit), and progress, as well as response to treatments was analysed. RESULTS: A total of 24 patients, 12 males and 12 females, were included, of which 70.8% (17) were under 1 year of age. A total of 79.2% (19) were in postoperative care after surgery for a congenital heart disease. The most notable complications were sepsis (3/24 cases, 12.5%), hypoalbuminaemia (3/24, 12.5%), haemodynamic changes (2/24, 8.3%) and catheter-associated sepsis (2/16, 12.5%). The treatment with fat-free or rich in medium chain triglycerides diet was effective in 9/21 cases (43%) and total parenteral nutrition in 3/5 (60%), as opposed to the infusion of somatostatin in 8/11 (73%), used in second or third line. Somatostatin side effects were hypoglycaemia, hyperglycaemia and digestive disturbances, one patient in each case, and not causing complications. We did not find prognostic factors as regards progression or for the response to the different treatments. CONCLUSIONS: Sepsis, hypoalbuminaemia and haemodynamic disturbances were found to be complications associated to chylothorax. The treatment with somatostatin did not produce severe side effects, and there was a positive response in 73% of those treated with it.


Assuntos
Quilotórax/terapia , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Estudos Retrospectivos
7.
An. pediatr. (2003, Ed. impr.) ; 70(3): 223-229, mar. 2009. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-59818

RESUMO

Introducción: en la experiencia clínica en cuidados intensivos pediátricos es relativamente frecuente encontrar quilotórax, dado que suele aparecer en el postoperatorio de cirugías cardiotorácicas. Sin embargo, todavía hay incertidumbre acerca de su tratamiento en cuanto a la elección de las distintas opciones terapéuticas, su eficacia y factores pronósticos para una respuesta positiva. Objetivos: describir nuestra experiencia en el manejo de los pacientes con quilotórax ingresados en una unidad de cuidados intensivos pediátricos. Buscar factores pronósticos de respuesta a los diversos tratamientos. Material y método: se trata de un estudio descriptivo y analítico, retrospectivo, que abarca el periodo 2000–2007. Se incluyeron los casos de quilotórax pediátrico de cualquier etiología atendidos en dicho periodo en nuestra unidad (excluidos casos neonatales congénitos). Se registraron variables demográficas, etiología, evolución del débito, complicaciones, tipo de tratamiento con resultado y efectos secundarios y evolución clínica. Se analizó estadísticamente la posible relación entre diversas variables (edad, etiología, débito) y la evolución y la respuesta a tratamientos. Resultados: se recogió un total de 24 pacientes, la mitad de cada sexo. Un 70,8% (17) eran menores de 1 año. El 79,2% (19) se encontraban en el postoperatorio de una cirugía por cardiopatía congénita. Las complicaciones más destacables fueron sepsis (3/24 casos, 12,5%), hipoalbuminemia (3/24, 12,5%), alteración hemodinámica (2/24, 8,3%) y sepsis por catéter (2/16, 12,5%). El tratamiento con dieta exenta en grasas o rica en ácidos grasos de cadena media fue eficaz en 9/21 casos (43%) y la nutrición parenteral total en 3/5 (60%), frente a la perfusión de somatostatina en 8/11 (73%), usada como segunda o tercera elección. Los efectos secundarios en relación con ella fueron hipoglucemia, hiperglucemia y molestias digestivas, un paciente en cada caso, y no causaron complicaciones. No se encontraron factores pronósticos de la evolución ni de la respuesta a los diversos tratamientos. Conclusiones: encontramos pacientes con sepsis, hipoalbuminemia y trastornos hemodinámicos como complicaciones relacionadas con el quilotórax. El tratamiento con somatostatina no presentó complicaciones graves y en un 73% de los pacientes tratados se produjo curación del quilotórax (AU)


Introduction: Chylothorax is a fairly common condition seen in paediatric intensive care units, since it usually appears in the postoperative care of cardiothoracic surgery. Nevertheless, there is still uncertainty on the most effective treatment option and the prognostic factors for a positive response. Objectives: To describe our experience in the management of patients with chylothorax admitted to our paediatric intensive care unit (PICU). To look for prognostic factors for a response to the different treatments. Material and method: This is a descriptive and analytical, retrospective study, that includes the period 2000–2007. All cases of chylothorax of any aetiology diagnosed during this period in our PICU were included (excluding congenital neonatal cases). Demographic variables, aetiology, evolution of the debit, complications, type of treatment with results and side effects were recorded, along with the clinical progress. The possible relationship between the different variables (age, aetiology, debit), and progress, as well as response to treatments was analysed. Results: A total of 24 patients, 12 males and 12 females, were included, of which 70.8% (17) were under 1 year of age. A total of 79.2% (19) were in postoperative care after surgery for a congenital heart disease. The most notable complications were sepsis (3/24 cases, 12.5%), hypoalbuminaemia (3/24, 12.5%), haemodynamic changes (2/24, 8.3%) and catheter-associated sepsis (2/16, 12.5%). The treatment with fat-free or rich in medium chain triglycerides diet was effective in 9/21 cases (43%) and total parenteral nutrition in 3/5 (60%), as opposed to the infusion of somatostatin in 8/11 (73%), used in second or third line. Somatostatin side effects were hypoglycaemia, hyperglycaemia and digestive disturbances, one patient in each case, and not causing complications. We did not find prognostic factors as regards progression or for the response to the different treatments. Conclusions: Sepsis, hypoalbuminaemia and haemodynamic disturbances were found to be complications associated to chylothorax. The treatment with somatostatin did not produce severe side effects, and there was a positive response in 73% of those treated with it (AU)


Assuntos
Humanos , Masculino , Feminino , Recém-Nascido , Lactente , Pré-Escolar , Criança , Quilotórax/terapia , Estudos Retrospectivos
10.
Acta pediatr. esp ; 65(7): 330-334, jul. 2007. ilus
Artigo em Es | IBECS | ID: ibc-056012

RESUMO

Los síndromes de shock tóxico y shock similar a tóxico son entidades causadas por superantígenos que ponen en marcha una respuesta sistémica que determina sus características clínicas. Exponemos dos casos detectados en nuestro hospital que cumplen los criterios diagnósticos de síndrome de shock tóxico al presentar una temperatura ³38,9 ºC, un exantema con posterior descamación, una hipotensión arterial y una afectación de 3 o más órganos. El primero evolucionó hacia un fallo multiorgánico con cultivos negativos, por lo que se diagnosticó de etiología probablemente estafilocócica. El paciente experimentó un deterioro progresivo, sin respuesta a las medidas de soporte, y falleció. El segundo caso se manifestó como una fascitis necrosante de la pared abdominal, que precisó un desbridamiento quirúrgico. El crecimiento de Streptococcus pyogenes se detectó en la faringe y en el exudado de la herida quirúrgica. Su evolución fue favorable, por lo que recibió el alta con una estenosis traqueal como única secuela. Los dos casos demuestran la importancia de la sospecha clínica en estos cuadros para pautar el tratamiento antibiótico e instaurar una terapia de soporte con rapidez


Toxic shock syndrome and toxic shock-like syndrome are diseases caused by superantigens that trigger a systemic inflammatory response, which is responsible for the clinical manifestations. We report two cases treated at our institution that meet the diagnostic criteria for toxic shock syndrome: body temperature ³38.9 ºC, rash with subsequent desquamation, hypotension and involvement of three or more organ systems. The first patient developed multisystem failure with negative cultures, suggesting a probable staphylococcal etiology. The patient experienced a progressive deterioration with no response to supportive care, and finally died. The second case presented as necrotising fasciitis of the abdominal wall, requiring surgical debridement. Streptococcus pyogenes was grown in the samples obtained from the pharynx and from the surgical wound. This patient had a favorable clinical course with tracheal stenosis as the only sequela at the discharge from hospital. High clinical suspicion is extremely important in this syndrome for the early initiation of antibiotic therapy and intensive care


Assuntos
Masculino , Criança , Humanos , Choque Séptico/diagnóstico , Infecções Estreptocócicas , Infecções Estafilocócicas , Choque Séptico/tratamento farmacológico , Staphylococcus aureus/patogenicidade , Streptococcus pyogenes/patogenicidade , Fasciite Necrosante/etiologia , Estenose Traqueal/etiologia
11.
An Pediatr (Barc) ; 63(3): 203-11, 2005 Sep.
Artigo em Espanhol | MEDLINE | ID: mdl-16219272

RESUMO

INTRODUCTION: To describe the epidemiological, clinical, microbiological, neuroimaging and laboratory features, treatment, and outcome in a cohort of children with acute disseminated encephalomyelitis (ADEM). PATIENTS AND METHODS: Retrospective chart review was performed of children with a diagnosis of ADEM over a 23-year period in a tertiary hospital in Spain. RESULTS: Twelve cases were identified. Ten cases (83%) occurred after 1992. Nine patients (75%) presented between April and September. The mean age was 6 years. Nine patients (75%) were male. Fifty percent of the patients had a history of infectious disease or vaccination. The most frequent nonspecific symptom was fever in 75%. The most frequent neurological manifestations were motor deficits and altered consciousness in 75%. Cerebrospinal fluid abnormalities were found in 83%. All patients had at least one brain scan and one brain magnetic resonance imaging (MRI) scan. Three patients underwent spinal MRI. The sensitivity of MRI was greater than that of the scanner in the diagnosis of ADEM. An etiologic diagnosis was made in four patients: Mycoplasma pneumoniae, beta hemolytic streptococcus group A, Epstein-Barr virus and measles-mumps-rubella vaccination. Eleven patients were treated with corticosteroids and one was treated with intravenous immunoglobulin therapy. One patient died while 75 % of the patients had a good outcome. CONCLUSIONS: ADEM is in an infrequent disease in children. The clinical features are similar to those of infectious encephalitis. Etiologic diagnosis is difficult to establish but this entity is usually preceded by an infection. The neuroimaging test of choice to establish the diagnosis is MRI. In most patients, the prognosis is good.


Assuntos
Encefalomielite , Doença Aguda , Criança , Encefalomielite/diagnóstico , Encefalomielite/epidemiologia , Encefalomielite/microbiologia , Encefalomielite/terapia , Feminino , Humanos , Masculino , Estudos Retrospectivos , Espanha
12.
An. pediatr. (2003, Ed. impr.) ; 63(3): 203-211, sept. 2005. ilus, tab
Artigo em Es | IBECS | ID: ibc-041295

RESUMO

Introducción. El objetivo de este estudio es describir las características epidemiológicas, clínicas, microbiológicas, parámetros de laboratorio, estudios de neuroimagen, tratamiento y resultado de una cohorte de niños con diagnóstico de encefalomielitis aguda diseminada (EMAD). Pacientes y métodos. Estudio retrospectivo de las historias clínicas de los niños con diagnóstico de EMAD atendidos durante 23 años en un hospital terciario español. Resultados. Se identificaron 12 casos. Diez (83 %) a partir del año 1992. Nueve (75 %) se presentaron entre abril y septiembre. La edad media fue de 6 años. El 75 % eran varones. En el 50 % hubo infección o vacunación previa. El síntoma general más frecuente fue la fiebre, en el 75 %. La afectación motora y alteración de conciencia fueron las principales manifestaciones neurológicas, presentes en el 75 %. El estudio del líquido cefalorraquídeo (LCR) fue anormal en el 83 %. En todos los pacientes se realizó al menos un escáner y una resonancia magnética (RM) craneal y en 3 casos RM espinal. La RM se mostró más sensible que el escáner para el diagnóstico. Se estableció el diagnóstico etiológico en 4 casos: Mycoplasma, estreptococo betahemolítico del grupo A (EBHGA), virus de Epstein-Barr (VEB) y vacunación triple vírica. Once pacientes recibieron tratamiento con corticoides y en 1 caso se asociaron inmunoglobulinas intravenosas. Un paciente falleció y el 75 % tuvo una evolución favorable. Conclusiones. Se trata de una enfermedad poco frecuente en la infancia. La sintomatología es superponible a la de las encefalitis agudas infecciosas. La etiología es difícil de establecer, pero suele estar precedida por un antecedente infeccioso. La RM fue la prueba de imagen de elección para establecer el diagnóstico. El pronóstico suele ser favorable


Introduction. To describe the epidemiological, clinical, microbiological, neuroimaging and laboratory features, treatment, and outcome in a cohort of children with acute disseminated encephalomyelitis (ADEM). Patients and methods. Retrospective chart review was performed of children with a diagnosis of ADEM over a 23-year period in a tertiary hospital in Spain. Results. Twelve cases were identified. Ten cases (83 %) occurred after 1992. Nine patients (75 %) presented between April and September. The mean age was 6 years. Nine patients (75 %) were male. Fifty percent of the patients had a history of infectious disease or vaccination. The most frequent nonspecific symptom was fever in 75 %. The most frequent neurological manifestations were motor deficits and altered consciousness in 75 %. Cerebrospinal fluid abnormalities were found in 83 %. All patients had at least one brain scan and one brain magnetic resonance imaging (MRI) scan. Three patients underwent spinal MRI. The sensitivity of MRI was greater than that of the scanner in the diagnosis of ADEM. An etiologic diagnosis was made in four patients: Mycoplasma pneumoniae, beta hemolytic streptococcus group A, Epstein-Barr virus and measles-mumps-rubella vaccination. Eleven patients were treated with corticosteroids and one was treated with intravenous immunoglobulin therapy. One patient died while 75 % of the patients had a good outcome. Conclusions. ADEM is in an infrequent disease in children. The clinical features are similar to those of infectious encephalitis. Etiologic diagnosis is difficult to establish but this entity is usually preceded by an infection. The neuroimaging test of choice to establish the diagnosis is MRI. In most patients, the prognosis is good


Assuntos
Criança , Humanos , Encefalomielite/diagnóstico , Encefalomielite/epidemiologia , Encefalomielite/microbiologia , Encefalomielite/terapia , Doença Aguda , Estudos Retrospectivos , Espanha
13.
An. pediatr. (2003, Ed. impr.) ; 63(2): 152-159, ago. 2005. ilus, tab
Artigo em Es | IBECS | ID: ibc-044393

RESUMO

Introducción: En los últimos años destaca en la literatura especializada una preocupación reciente sobre las cuestiones referentes al cuidado del paciente en fase terminal dentro de la unidad de cuidados intensivos pediátrica (UCIP), prestando especial atención a la unidad familia/paciente, comunicación y muerte digna. Objetivo: Evaluar a través de la revisión bibliográfica, la experiencia y el desarrollo de los cuidados al final de la vida dentro de las UCIP, determinando qué tipo de estudios se han realizado, qué temas se han tratado y cuál ha sido la evolución en los últimos años. Material y métodos: Revisión de la literatura médica en Medline y la base de datos National Library of Medicine Gateway, utilizando las palabras claves extraídas del MeSH: "end of life", "pediatric intensive care", "critical care", "palliative care", "death", "compassionate care". El año límite inferior de la búsqueda fue 1990. Los idiomas seleccionados fueron inglés y castellano. Los criterios de inclusión fueron la relación con el tema objeto de estudio, excluyéndose aquellos artículos que no tenían abstract. Se obtuvieron trabajos adicionales a través de las referencias bibliográficas de los artículos seleccionados. Resultados: De la búsqueda inicial se obtuvieron un total de 81 artículos de los que se seleccionaron 43 por sus referencias al cuidado al final de la vida en UCI, de los cuáles 18 hacían especial referencia a la UCIP. Más de la mitad (62 %) fueron revisiones del tema y el resto, estudios de tipo descriptivo u observacional. El número de publicaciones es creciente a partir del año 1995. La mayoría de los trabajos (85 %) han sido realizados en Estados Unidos y Canadá, y se han encontrado tres referencias en España. Conclusiones: En los últimos años se han llevado a cabo varios estudios que muestran cada vez mayor sensibilización acerca de cuestiones sobre la limitación del esfuerzo terapéutico y la necesidad de mejorar los cuidados médicos y de bienestar al final de la vida en el entorno de la UCIP


Introduction: In the last few years, there has been growing concern in the literature about issues related to end-of-life care in pediatric intensive care units (PICUs), with special attention on the family/patient unit, communication, and a dignified death. Objective: To evaluate the experience and development of end-of-life care in PICUs through a literature review, by determining the type of studies that have been performed, their topics, the issues discussed, and their development in the last few years. Material and methods: Review of the medical literature in Medline and the database of the National Library of Medicine Gateway, using the key words from MeSH: "end of life", "pediatric intensive care", "critical care", "palliative care", "death", and "compassionate care". The earliest year of the search was 1990. The languages selected were English and Spanish. Inclusion criteria were the relationship with the topic to be studied, excluding articles with no abstract. Additional searches were made of references in selected articles. Results: Eighty-one articles were retrieved from the initial search. Of these, 43 were selected as the most relevant investigations in end-of-life care in ICUs and 18 placed special emphasis on the PICU. More than half of the articles (62 %) were reviews and the remaining articles were descriptive or observational studies. The number of publications increased after 1995. Most of the studies were performed in the USA or Canada and only three studies were performed in Spain. Conclusions: In the last few years, several studies have been performed that reveal increasing concern about limits to therapeutic intervention and the need to improve end-of-life care in the PICU setting


Assuntos
Lactente , Criança , Adolescente , Pré-Escolar , Humanos , Unidades de Terapia Intensiva Pediátrica , Cuidados Paliativos , Assistência Terminal
14.
An Pediatr (Barc) ; 63(2): 152-9, 2005 Aug.
Artigo em Espanhol | MEDLINE | ID: mdl-16045875

RESUMO

INTRODUCTION: In the last few years, there has been growing concern in the literature about issues related to end-of-life care in pediatric intensive care units (PICUs), with special attention on the family/patient unit, communication, and a dignified death. OBJECTIVE: To evaluate the experience and development of end-of-life care in PICUs through a literature review, by determining the type of studies that have been performed, their topics, the issues discussed, and their development in the last few years. MATERIAL AND METHODS: Review of the medical literature in Medline and the database of the National Library of Medicine Gateway, using the key words from MeSH: "end of life", "pediatric intensive care", "critical care", "palliative care", "death", and "compassionate care". The earliest year of the search was 1990. The languages selected were English and Spanish. Inclusion criteria were the relationship with the topic to be studied, excluding articles with no abstract. Additional searches were made of references in selected articles. RESULTS: Eighty-one articles were retrieved from the initial search. Of these, 43 were selected as the most relevant investigations in end-of-life care in ICUs and 18 placed special emphasis on the PICU. More than half of the articles (62 %) were reviews and the remaining articles were descriptive or observational studies. The number of publications increased after 1995. Most of the studies were performed in the USA or Canada and only three studies were performed in Spain. CONCLUSIONS: In the last few years, several studies have been performed that reveal increasing concern about limits to therapeutic intervention and the need to improve end-of-life care in the PICU setting.


Assuntos
Unidades de Terapia Intensiva Pediátrica , Cuidados Paliativos , Assistência Terminal , Adolescente , Criança , Pré-Escolar , Humanos , Lactente
15.
Nutr Hosp ; 20(1): 46-51, 2005.
Artigo em Inglês | MEDLINE | ID: mdl-15762419

RESUMO

UNLABELLED: Parenteral nutrition (PN) has become a mainstay in the treatment of critically ill children, and in the management of extremely premature newborns. We analyse the changes in the profile of pediatric PN in our institution during the last decade. METHOD: The clinical record of all patients under 16 who received PN in 1994 and 2002 were reviewed. Epidemiological data as well as composition of the solutions were recorded. Student t test and Chi-square were used for comparisons as appropriate. p value < 0.05 was considered as statistically significant. RESULTS: 194 patients received PN in 1994 (123 neonates and 71 children); 186 in 2002 (112 neonates and 74 children). The percentage of inpatients who received PN was 10.7% in 1994 vs 3.7% in 2002 in neonates; 1% in 1994 vs 1.3% in 2002, in infants and children. Gastrointestinal surgery in infants and children and extreme prematurity in newborns were the most frequent indication. All neonates received tailored PN solutions while it was standardised in almost 60% of children. Internal jugular vein in children and peripherally inserted central venous catheters in neonates were the most usual vascular access. Length of PN was 10 +/- 8.7 days in 1994 vs 9.2 +/- 8.2 in 2002 in neonates; 15.2 +/- 14.8 days in 1994 vs 11.0 +/- 14.9 in 2002 in infants and children. 21% of the children presented at least one complication due to PN. CONCLUSIONS: There have been very few changes in the use as well as in the profile of the PN practise during the last decade. Gastrointestinal surgery and prematurity were the most frequent indications.


Assuntos
Nutrição Parenteral/estatística & dados numéricos , Cateteres de Demora , Criança , Hospitais Pediátricos/estatística & dados numéricos , Humanos , Lactente , Nutrição Parenteral/métodos , Estudos Retrospectivos
20.
An Esp Pediatr ; 35(6): 389-91, 1991 Dec.
Artigo em Espanhol | MEDLINE | ID: mdl-1793187

RESUMO

We analyze 13 children between 1 and 3 years old (mean: 24.6 +/- 6.5 months), who were diagnosed (by direct or radiological examination) of epiglottitis. Seven were male. All of them had fever and respiratory distress. Six blood cultures (46%) were positive for Hemophilus Influenzae, and in 5 cases were resistant to beta-lactamases. Diagnose was made by radiology (70%) or by direct examination (30%). Five patients were not intubated (38%), with a favorable outcome. One died after a cardiorespiratory arrest due to self-extubation. We describe in this study our experience in the conservative treatment of epiglotitis, although initial nasotracheal intubation is the safest method for the management of this entity.


Assuntos
Epiglotite/diagnóstico por imagem , Infecções por Haemophilus/microbiologia , Intubação Intratraqueal , Doença Aguda , Obstrução das Vias Respiratórias/prevenção & controle , Pré-Escolar , Epiglotite/microbiologia , Epiglotite/terapia , Feminino , Haemophilus influenzae , Humanos , Lactente , Masculino , Radiografia
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